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ea0090oc5.6 | Oral Communications 5: Adrenal and Cardiovascular Endocrinology 1 | ECE2023

Venous thromboembolism complications in Cushing’s syndrome: results of a secondary survey within the European Registries for Rare Endocrine Conditions (EuRRECa) and the European Reference Network on Rare Endocrine Conditions (Endo-ERN)

Cherenko Mariya , Appelman-Dijkstra Natasha , Priego Zurita Ana Luisa , Klok F.A. , Biermasz Nienke , M. Dekkers Olaf , Ahmed Faisal , Pereira Alberto M.

Background: Venous thromboembolism(VTE) is a well-known perioperative complication in patients with Cushings syndrome(CS) and may be preventable. A recent report highlighted that thromboprophylaxis management in patients with CS still varies considerably across Endo-ERN reference centers but the actual incidence of VTE and its management in individual patients is unclear.Aim: To collect epidemiological and clinical data of new cases of CS reported ...

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ea0081oc12.1 | Oral Communications 12: Reproductive and Developmental Endocrinology | ECE2022

The European Registries for Rare Endocrine Conditions (EuRRECa): the use of a core registry for collecting common data elements and clinician and patient reported outcomes

Priego Zurita Ana Luisa , Ali Salma Rashid , Bryce Jillian , Cools Martine , Danne Thomas , Dekkers Olaf M , Hiort Olaf , Katugampola Harshini , Linglart Agnes , Netchine Irene , Nordenstrom Anna , Patocs Attila , Pereira Alberto M , Persani Luca , Reisch Nicole , Smyth Arelene , Sumnik Zdenek , Taruscio Domenica , Visser Edward , Appelman-Dijkstra Natasha , Ahmed Faisal

Introduction: The European Registries for Rare Endocrine Conditions (EuRRECa) was created in collaboration with the European Reference Network on Rare Endocrine Conditions (Endo-ERN), the European Society for Paediatric Endocrinology and the European Society of Endocrinology to support the needs of the endocrine community.Aim: To describe the patient population and data entered in the EuRRECa Core Registry between June 2019 and December 2021.<p class...

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Endocrine Abstracts

Venous thromboembolism complications in Cushing’s syndrome: results of a secondary survey within the European Registries for Rare Endocrine Conditions (EuRRECa) and the European Reference Network on Rare Endocrine Conditions (Endo-ERN)

The European Registries for Rare Endocrine Conditions (EuRRECa): the use of a core registry for collecting common data elements and clinician and patient reported outcomes

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